TY - JOUR

T1 - Psychometric properties of the Danish version of the Caregiver Burden Scale

T2 - Investigating predictors and severity of burden after stroke, spinal cord injury, or traumatic brain injury

AU - Norup, Anne

AU - Soendergaard, Pernille Langer

AU - Wolffbrandt, Mia Moth

AU - Biering-Sørensen, Fin

AU - Arango-Lasprilla, Juan Carlos

AU - Dornonville de la Cour, Frederik Lehman

PY - 2024

Y1 - 2024

N2 - OBJECTIVE: To investigate (i) psychometric properties of the Danish version of the Caregiver Burden Scale, (ii) predictors of burden in caregivers of persons with stroke, spinal cord injury, or traumatic brain injury, and (iii) severity of caregiver burden, and compare level of severity of burden in caregivers of persons with stroke, spinal cord injury, or traumatic brain injury.DESIGN: Cross-sectional study.PARTICIPANTS: Pooled sample of 122 caregivers.METHODS: Psychometric properties including internal consistency, floor and ceiling effects, inter-item and item-total correlation were investigated using the Caregiver Burden Scale. Severity of burden was compared using Fisher's exact test and ANOVA, and predictors of burden were investigated using multiple linear regression models.RESULTS: The total burden score exhibited good internal consistency (α = 0.93), with no floor or ceiling effects. Longer time as a caregiver was a significant predictor of higher total score. The majority (52.2%) reported a low level of caregiver burden (below cut-off of 2.00). Mean scores on the Caregiver Burden Scale were not significantly different among caregivers across diagnostic groups. Differences were found when comparing spinal cord injury caregivers with brain injury caregivers (traumatic brain injury and stroke, collectively), χ2(2) = 6.38, p = 0.04, as spinal cord injury caregivers were more likely to report low levels of burden.CONCLUSION: Good psychometric properties were reported, and most caregivers reported a low level of burden, and longer time as a caregiver was associated with higher burden. Consequently, the Caregiver Burden Scale is a valid measure to use when measuring burden in caregivers of stroke, spinal cord injury, and traumatic brain injury patients.

AB - OBJECTIVE: To investigate (i) psychometric properties of the Danish version of the Caregiver Burden Scale, (ii) predictors of burden in caregivers of persons with stroke, spinal cord injury, or traumatic brain injury, and (iii) severity of caregiver burden, and compare level of severity of burden in caregivers of persons with stroke, spinal cord injury, or traumatic brain injury.DESIGN: Cross-sectional study.PARTICIPANTS: Pooled sample of 122 caregivers.METHODS: Psychometric properties including internal consistency, floor and ceiling effects, inter-item and item-total correlation were investigated using the Caregiver Burden Scale. Severity of burden was compared using Fisher's exact test and ANOVA, and predictors of burden were investigated using multiple linear regression models.RESULTS: The total burden score exhibited good internal consistency (α = 0.93), with no floor or ceiling effects. Longer time as a caregiver was a significant predictor of higher total score. The majority (52.2%) reported a low level of caregiver burden (below cut-off of 2.00). Mean scores on the Caregiver Burden Scale were not significantly different among caregivers across diagnostic groups. Differences were found when comparing spinal cord injury caregivers with brain injury caregivers (traumatic brain injury and stroke, collectively), χ2(2) = 6.38, p = 0.04, as spinal cord injury caregivers were more likely to report low levels of burden.CONCLUSION: Good psychometric properties were reported, and most caregivers reported a low level of burden, and longer time as a caregiver was associated with higher burden. Consequently, the Caregiver Burden Scale is a valid measure to use when measuring burden in caregivers of stroke, spinal cord injury, and traumatic brain injury patients.

KW - Humans

KW - Spinal Cord Injuries/psychology

KW - Female

KW - Male

KW - Psychometrics

KW - Cross-Sectional Studies

KW - Middle Aged

KW - Brain Injuries, Traumatic/psychology

KW - Stroke/psychology

KW - Adult

KW - Caregivers/psychology

KW - Caregiver Burden/psychology

KW - Denmark

KW - Surveys and Questionnaires

KW - Aged

KW - Cost of Illness

KW - Reproducibility of Results

U2 - 10.2340/jrm.v56.34732

DO - 10.2340/jrm.v56.34732

M3 - Journal article

C2 - 38698655

VL - 56

JO - Journal of Rehabilitation Medicine

JF - Journal of Rehabilitation Medicine

SN - 1650-1977

M1 - jrm34732

ER -