Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease characterized by nodules, draining sinus tracts, and abscesses in intertriginous regions. The reported prevalence of HS ranges from 0.4% to 4% with an average age of HS disease onset at 23 years.1 Given the early onset of HS and the advocated use of dedicated social network channels,2 we explored the current use of information and communications technologies (ICT) in adult HS patients.