The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study

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The usage, quality and relevance of information and communications technologies in patients with chronic urticaria : A UCARE study. / Maurer, Marcus; Weller, Karsten; Magerl, Markus; Maurer, Rasmus Robin; Vanegas, Emanuel; Felix, Miguel; Cherrez, Annia; Mata, Valeria L.; Kasperska-Zajac, Alicja; Sikora, Agnieszka; Fomina, Daria; Kovalkova, Elena; Godse, Kiran; Rao, Nimmagadda Dheeraj; Khoshkhui, Maryam; Rastgoo, Sahar; Jardim Criado, Roberta Fachini; Abuzakouk, Mohamed; Grandon, Deepa; van Doorn, Martijn; Valle, Solange Olliveira Rodrigues; Lima, Eduardo Magalhaes de Souza; Thomsen, Simon Francis; Ramon, German D.; Benavides, Edgar E. Matos; Bauer, Andrea; Gimenez-Arnau, Ana Maria; Kocaturk, Emek; Guillet, Carole; Larco, Jose Ignacio; Zhao, Zuo-Tao; Makris, Michael; Ritchie, Carla; Xepapadakia, Paraskevi; Ensina, Luis Felipe; Cherrez, Sofia; Cherrez-Ojeda, Ivan.

I: World Allergy Organization Journal, Bind 13, Nr. 11, 100475, 2020.

Publikation: Bidrag til tidsskriftTidsskriftartikelfagfællebedømt

Harvard

Maurer, M, Weller, K, Magerl, M, Maurer, RR, Vanegas, E, Felix, M, Cherrez, A, Mata, VL, Kasperska-Zajac, A, Sikora, A, Fomina, D, Kovalkova, E, Godse, K, Rao, ND, Khoshkhui, M, Rastgoo, S, Jardim Criado, RF, Abuzakouk, M, Grandon, D, van Doorn, M, Valle, SOR, Lima, EMDS, Thomsen, SF, Ramon, GD, Benavides, EEM, Bauer, A, Gimenez-Arnau, AM, Kocaturk, E, Guillet, C, Larco, JI, Zhao, Z-T, Makris, M, Ritchie, C, Xepapadakia, P, Ensina, LF, Cherrez, S & Cherrez-Ojeda, I 2020, 'The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study', World Allergy Organization Journal, bind 13, nr. 11, 100475. https://doi.org/10.1016/j.waojou.2020.100475

APA

Maurer, M., Weller, K., Magerl, M., Maurer, R. R., Vanegas, E., Felix, M., Cherrez, A., Mata, V. L., Kasperska-Zajac, A., Sikora, A., Fomina, D., Kovalkova, E., Godse, K., Rao, N. D., Khoshkhui, M., Rastgoo, S., Jardim Criado, R. F., Abuzakouk, M., Grandon, D., ... Cherrez-Ojeda, I. (2020). The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study. World Allergy Organization Journal, 13(11), [100475]. https://doi.org/10.1016/j.waojou.2020.100475

Vancouver

Maurer M, Weller K, Magerl M, Maurer RR, Vanegas E, Felix M o.a. The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study. World Allergy Organization Journal. 2020;13(11). 100475. https://doi.org/10.1016/j.waojou.2020.100475

Author

Maurer, Marcus ; Weller, Karsten ; Magerl, Markus ; Maurer, Rasmus Robin ; Vanegas, Emanuel ; Felix, Miguel ; Cherrez, Annia ; Mata, Valeria L. ; Kasperska-Zajac, Alicja ; Sikora, Agnieszka ; Fomina, Daria ; Kovalkova, Elena ; Godse, Kiran ; Rao, Nimmagadda Dheeraj ; Khoshkhui, Maryam ; Rastgoo, Sahar ; Jardim Criado, Roberta Fachini ; Abuzakouk, Mohamed ; Grandon, Deepa ; van Doorn, Martijn ; Valle, Solange Olliveira Rodrigues ; Lima, Eduardo Magalhaes de Souza ; Thomsen, Simon Francis ; Ramon, German D. ; Benavides, Edgar E. Matos ; Bauer, Andrea ; Gimenez-Arnau, Ana Maria ; Kocaturk, Emek ; Guillet, Carole ; Larco, Jose Ignacio ; Zhao, Zuo-Tao ; Makris, Michael ; Ritchie, Carla ; Xepapadakia, Paraskevi ; Ensina, Luis Felipe ; Cherrez, Sofia ; Cherrez-Ojeda, Ivan. / The usage, quality and relevance of information and communications technologies in patients with chronic urticaria : A UCARE study. I: World Allergy Organization Journal. 2020 ; Bind 13, Nr. 11.

Bibtex

@article{50915fee2022466ebe0ca449c544017b,
title = "The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study",
abstract = "Background: Chronic urticaria (CU) is characterized by itchy recurrent wheals, angioedema, or both for 6 weeks or longer. CU can greatly impact patients' physical and emotional quality of life. Patients with chronic conditions are increasingly seeking information from information and communications technologies (ICTs) to manage their health. The objective of this study was to assess the frequency of usage and preference of ICTs from the perspective of patients with CU.Methods: In this cross-sectional study, 1800 patients were recruited from primary healthcare centers, university hospitals or specialized clinics that form part of the UCARE (Urticaria Centers of Reference and Excellence) network throughout 16 countries. Patients were >12 years old and had physician-diagnosed chronic spontaneous urticaria (CSU) or chronic inducible urticaria (CIndU). Patients completed a 23-item questionnaire containing questions about ICT usage, including the type, frequency, preference, and quality, answers to which were recorded in a standardized database at each center. For analysis, ICTs were categorized into 3 groups as follows: one-to-one: SMS, WhatsApp, Skype, and email; one-to-many: YouTube, web browsers, and blogs or forums; many-to-many: Instagram, Twitter, Facebook, and LinkedIn.Results: Overall, 99.6% of CU patients had access to ICT platforms and 96.7% had internet access. Daily, 85.4% patients used one-to-one ICT platforms most often, followed by one-to-many ICTs (75.5%) and many-to-many ICTs (59.2%). The daily ICT usage was highest for web browsers (72.7%) and WhatsApp (70.0%). The general usage of ICT platforms increased in patients with higher levels of education. One-to-many was the preferred ICT category for obtaining general health information (78.3%) and for CU-related information (75.4%). A web browser (77.6%) was by far the most commonly used ICT to obtain general health information, followed by YouTube (25.8%) and Facebook (16.3%). Similarly, for CU-specific information, 3 out of 4 patients (74.6%) used a web browser, 20.9% used YouTube, and 13.6% used Facebook. One in 5 (21.6%) patients did not use any form of ICT for obtaining information on CU. The quality of the information obtained from one-to-many ICTs was rated much more often as very interesting and of good quality for general health information (53.5%) and CU-related information (51.5%) as compared to the other categories.Conclusions: Usage of ICTs for health and CU-specific information is extremely high in all countries analyzed, with web browsers being the preferred ICT platform.",
keywords = "(3-5) ICT, Information and communications technology, Urticaria, Self-management",
author = "Marcus Maurer and Karsten Weller and Markus Magerl and Maurer, {Rasmus Robin} and Emanuel Vanegas and Miguel Felix and Annia Cherrez and Mata, {Valeria L.} and Alicja Kasperska-Zajac and Agnieszka Sikora and Daria Fomina and Elena Kovalkova and Kiran Godse and Rao, {Nimmagadda Dheeraj} and Maryam Khoshkhui and Sahar Rastgoo and {Jardim Criado}, {Roberta Fachini} and Mohamed Abuzakouk and Deepa Grandon and {van Doorn}, Martijn and Valle, {Solange Olliveira Rodrigues} and Lima, {Eduardo Magalhaes de Souza} and Thomsen, {Simon Francis} and Ramon, {German D.} and Benavides, {Edgar E. Matos} and Andrea Bauer and Gimenez-Arnau, {Ana Maria} and Emek Kocaturk and Carole Guillet and Larco, {Jose Ignacio} and Zuo-Tao Zhao and Michael Makris and Carla Ritchie and Paraskevi Xepapadakia and Ensina, {Luis Felipe} and Sofia Cherrez and Ivan Cherrez-Ojeda",
year = "2020",
doi = "10.1016/j.waojou.2020.100475",
language = "English",
volume = "13",
journal = "The World Allergy Organization Journal",
issn = "1939-4551",
publisher = "BioMed Central Ltd.",
number = "11",

}

RIS

TY - JOUR

T1 - The usage, quality and relevance of information and communications technologies in patients with chronic urticaria

T2 - A UCARE study

AU - Maurer, Marcus

AU - Weller, Karsten

AU - Magerl, Markus

AU - Maurer, Rasmus Robin

AU - Vanegas, Emanuel

AU - Felix, Miguel

AU - Cherrez, Annia

AU - Mata, Valeria L.

AU - Kasperska-Zajac, Alicja

AU - Sikora, Agnieszka

AU - Fomina, Daria

AU - Kovalkova, Elena

AU - Godse, Kiran

AU - Rao, Nimmagadda Dheeraj

AU - Khoshkhui, Maryam

AU - Rastgoo, Sahar

AU - Jardim Criado, Roberta Fachini

AU - Abuzakouk, Mohamed

AU - Grandon, Deepa

AU - van Doorn, Martijn

AU - Valle, Solange Olliveira Rodrigues

AU - Lima, Eduardo Magalhaes de Souza

AU - Thomsen, Simon Francis

AU - Ramon, German D.

AU - Benavides, Edgar E. Matos

AU - Bauer, Andrea

AU - Gimenez-Arnau, Ana Maria

AU - Kocaturk, Emek

AU - Guillet, Carole

AU - Larco, Jose Ignacio

AU - Zhao, Zuo-Tao

AU - Makris, Michael

AU - Ritchie, Carla

AU - Xepapadakia, Paraskevi

AU - Ensina, Luis Felipe

AU - Cherrez, Sofia

AU - Cherrez-Ojeda, Ivan

PY - 2020

Y1 - 2020

N2 - Background: Chronic urticaria (CU) is characterized by itchy recurrent wheals, angioedema, or both for 6 weeks or longer. CU can greatly impact patients' physical and emotional quality of life. Patients with chronic conditions are increasingly seeking information from information and communications technologies (ICTs) to manage their health. The objective of this study was to assess the frequency of usage and preference of ICTs from the perspective of patients with CU.Methods: In this cross-sectional study, 1800 patients were recruited from primary healthcare centers, university hospitals or specialized clinics that form part of the UCARE (Urticaria Centers of Reference and Excellence) network throughout 16 countries. Patients were >12 years old and had physician-diagnosed chronic spontaneous urticaria (CSU) or chronic inducible urticaria (CIndU). Patients completed a 23-item questionnaire containing questions about ICT usage, including the type, frequency, preference, and quality, answers to which were recorded in a standardized database at each center. For analysis, ICTs were categorized into 3 groups as follows: one-to-one: SMS, WhatsApp, Skype, and email; one-to-many: YouTube, web browsers, and blogs or forums; many-to-many: Instagram, Twitter, Facebook, and LinkedIn.Results: Overall, 99.6% of CU patients had access to ICT platforms and 96.7% had internet access. Daily, 85.4% patients used one-to-one ICT platforms most often, followed by one-to-many ICTs (75.5%) and many-to-many ICTs (59.2%). The daily ICT usage was highest for web browsers (72.7%) and WhatsApp (70.0%). The general usage of ICT platforms increased in patients with higher levels of education. One-to-many was the preferred ICT category for obtaining general health information (78.3%) and for CU-related information (75.4%). A web browser (77.6%) was by far the most commonly used ICT to obtain general health information, followed by YouTube (25.8%) and Facebook (16.3%). Similarly, for CU-specific information, 3 out of 4 patients (74.6%) used a web browser, 20.9% used YouTube, and 13.6% used Facebook. One in 5 (21.6%) patients did not use any form of ICT for obtaining information on CU. The quality of the information obtained from one-to-many ICTs was rated much more often as very interesting and of good quality for general health information (53.5%) and CU-related information (51.5%) as compared to the other categories.Conclusions: Usage of ICTs for health and CU-specific information is extremely high in all countries analyzed, with web browsers being the preferred ICT platform.

AB - Background: Chronic urticaria (CU) is characterized by itchy recurrent wheals, angioedema, or both for 6 weeks or longer. CU can greatly impact patients' physical and emotional quality of life. Patients with chronic conditions are increasingly seeking information from information and communications technologies (ICTs) to manage their health. The objective of this study was to assess the frequency of usage and preference of ICTs from the perspective of patients with CU.Methods: In this cross-sectional study, 1800 patients were recruited from primary healthcare centers, university hospitals or specialized clinics that form part of the UCARE (Urticaria Centers of Reference and Excellence) network throughout 16 countries. Patients were >12 years old and had physician-diagnosed chronic spontaneous urticaria (CSU) or chronic inducible urticaria (CIndU). Patients completed a 23-item questionnaire containing questions about ICT usage, including the type, frequency, preference, and quality, answers to which were recorded in a standardized database at each center. For analysis, ICTs were categorized into 3 groups as follows: one-to-one: SMS, WhatsApp, Skype, and email; one-to-many: YouTube, web browsers, and blogs or forums; many-to-many: Instagram, Twitter, Facebook, and LinkedIn.Results: Overall, 99.6% of CU patients had access to ICT platforms and 96.7% had internet access. Daily, 85.4% patients used one-to-one ICT platforms most often, followed by one-to-many ICTs (75.5%) and many-to-many ICTs (59.2%). The daily ICT usage was highest for web browsers (72.7%) and WhatsApp (70.0%). The general usage of ICT platforms increased in patients with higher levels of education. One-to-many was the preferred ICT category for obtaining general health information (78.3%) and for CU-related information (75.4%). A web browser (77.6%) was by far the most commonly used ICT to obtain general health information, followed by YouTube (25.8%) and Facebook (16.3%). Similarly, for CU-specific information, 3 out of 4 patients (74.6%) used a web browser, 20.9% used YouTube, and 13.6% used Facebook. One in 5 (21.6%) patients did not use any form of ICT for obtaining information on CU. The quality of the information obtained from one-to-many ICTs was rated much more often as very interesting and of good quality for general health information (53.5%) and CU-related information (51.5%) as compared to the other categories.Conclusions: Usage of ICTs for health and CU-specific information is extremely high in all countries analyzed, with web browsers being the preferred ICT platform.

KW - (3-5) ICT

KW - Information and communications technology

KW - Urticaria

KW - Self-management

U2 - 10.1016/j.waojou.2020.100475

DO - 10.1016/j.waojou.2020.100475

M3 - Journal article

C2 - 33204387

VL - 13

JO - The World Allergy Organization Journal

JF - The World Allergy Organization Journal

SN - 1939-4551

IS - 11

M1 - 100475

ER -

ID: 256982419