Awareness and Expectations Surrounding Family Planning and Pregnancy Among Danish Patients with Chronic Inflammatory Disease of the Skin or Joints: Results from an Online Survey

Publikation: Bidrag til tidsskriftTidsskriftartikelfagfællebedømt

Standard

Awareness and Expectations Surrounding Family Planning and Pregnancy Among Danish Patients with Chronic Inflammatory Disease of the Skin or Joints : Results from an Online Survey. / Johansen, Cæcilie B.; Laurberg, Trine B.; Egeberg, Alexander; Jensen, Ulla Fie A.; Hansen, Asbjørn L.; Skov, Lone; Kristensen, Lars E.; Thomsen, Simon F.; Schreiber, Karen.

I: Rheumatology and Therapy, Bind 8, Nr. 3, 2021, s. 1419-1433.

Publikation: Bidrag til tidsskriftTidsskriftartikelfagfællebedømt

Harvard

Johansen, CB, Laurberg, TB, Egeberg, A, Jensen, UFA, Hansen, AL, Skov, L, Kristensen, LE, Thomsen, SF & Schreiber, K 2021, 'Awareness and Expectations Surrounding Family Planning and Pregnancy Among Danish Patients with Chronic Inflammatory Disease of the Skin or Joints: Results from an Online Survey', Rheumatology and Therapy, bind 8, nr. 3, s. 1419-1433. https://doi.org/10.1007/s40744-021-00348-2

APA

Johansen, C. B., Laurberg, T. B., Egeberg, A., Jensen, U. F. A., Hansen, A. L., Skov, L., Kristensen, L. E., Thomsen, S. F., & Schreiber, K. (2021). Awareness and Expectations Surrounding Family Planning and Pregnancy Among Danish Patients with Chronic Inflammatory Disease of the Skin or Joints: Results from an Online Survey. Rheumatology and Therapy, 8(3), 1419-1433. https://doi.org/10.1007/s40744-021-00348-2

Vancouver

Johansen CB, Laurberg TB, Egeberg A, Jensen UFA, Hansen AL, Skov L o.a. Awareness and Expectations Surrounding Family Planning and Pregnancy Among Danish Patients with Chronic Inflammatory Disease of the Skin or Joints: Results from an Online Survey. Rheumatology and Therapy. 2021;8(3):1419-1433. https://doi.org/10.1007/s40744-021-00348-2

Author

Johansen, Cæcilie B. ; Laurberg, Trine B. ; Egeberg, Alexander ; Jensen, Ulla Fie A. ; Hansen, Asbjørn L. ; Skov, Lone ; Kristensen, Lars E. ; Thomsen, Simon F. ; Schreiber, Karen. / Awareness and Expectations Surrounding Family Planning and Pregnancy Among Danish Patients with Chronic Inflammatory Disease of the Skin or Joints : Results from an Online Survey. I: Rheumatology and Therapy. 2021 ; Bind 8, Nr. 3. s. 1419-1433.

Bibtex

@article{08fa52817176471aace95c360fd44504,
title = "Awareness and Expectations Surrounding Family Planning and Pregnancy Among Danish Patients with Chronic Inflammatory Disease of the Skin or Joints: Results from an Online Survey",
abstract = "Background: Patients with chronic inflammatory diseases (CIDs) may encounter challenges in their family planning journey. Here, we report on the access to family planning and pregnancy (FPP) information and the concerns among patients in Denmark with CIDs. Methods: Patients aged 18–50 years with CIDs participated in an online survey. Patients were recruited through patient advocacy groups and were asked to report information on their diagnosis, concerns related to FPP and perceptions of access to FPP information. Descriptive statistics were applied. Results: Of the eligible respondents, 368 had rheumatological diagnoses (rheumatoid arthritis, psoriatic arthritis, juvenile idiopathic arthritis or axial spondyloarthritis; mean age 40 years; 83% women, 17% men) and 95 had dermatological diagnoses (psoriasis or psoriatic arthritis; mean age 38 years; 67% women, 33% men). Approximately 70% of all patients reported seeking FPP information from patient advocacy groups; 57% of both cohorts used the internet as information sources; and 73% and 42% of rheumatological and dermatological cohorts used their hospital and specialist doctor, respectively. Despite this, 58% and 67% of patients with rheumatological and dermatological diagnoses reported limited or no access to FPP information, with > 70% of dermatological patients of early/mid-reproductive age reporting a lack of access to this information. Overall, 68% of patients with rheumatological and 73% with dermatological diagnoses had biological children, amongst whom 24% and 18%, respectively, indicated their disease affected the number of children they ultimately decided to have. The most frequent FPP concerns among patients who did not want any/more biological children were disease worsening, heredity and taking care of the child. Conclusions: Despite awareness of available sources of FPP information, patients expressed experiencing a feeling of limited access to information and having concerns that affect key decisions regarding FPP. The results of this survey highlight a need for improved and more standardised FPP information for patients with CIDs in Denmark.",
keywords = "Chronic inflammatory disease, Family planning, Online survey, Pregnancy",
author = "Johansen, {C{\ae}cilie B.} and Laurberg, {Trine B.} and Alexander Egeberg and Jensen, {Ulla Fie A.} and Hansen, {Asbj{\o}rn L.} and Lone Skov and Kristensen, {Lars E.} and Thomsen, {Simon F.} and Karen Schreiber",
note = "Publisher Copyright: {\textcopyright} 2021, The Author(s).",
year = "2021",
doi = "10.1007/s40744-021-00348-2",
language = "English",
volume = "8",
pages = "1419--1433",
journal = "Rheumatology and Therapy",
issn = "2198-6576",
publisher = "Adis International Ltd",
number = "3",

}

RIS

TY - JOUR

T1 - Awareness and Expectations Surrounding Family Planning and Pregnancy Among Danish Patients with Chronic Inflammatory Disease of the Skin or Joints

T2 - Results from an Online Survey

AU - Johansen, Cæcilie B.

AU - Laurberg, Trine B.

AU - Egeberg, Alexander

AU - Jensen, Ulla Fie A.

AU - Hansen, Asbjørn L.

AU - Skov, Lone

AU - Kristensen, Lars E.

AU - Thomsen, Simon F.

AU - Schreiber, Karen

N1 - Publisher Copyright: © 2021, The Author(s).

PY - 2021

Y1 - 2021

N2 - Background: Patients with chronic inflammatory diseases (CIDs) may encounter challenges in their family planning journey. Here, we report on the access to family planning and pregnancy (FPP) information and the concerns among patients in Denmark with CIDs. Methods: Patients aged 18–50 years with CIDs participated in an online survey. Patients were recruited through patient advocacy groups and were asked to report information on their diagnosis, concerns related to FPP and perceptions of access to FPP information. Descriptive statistics were applied. Results: Of the eligible respondents, 368 had rheumatological diagnoses (rheumatoid arthritis, psoriatic arthritis, juvenile idiopathic arthritis or axial spondyloarthritis; mean age 40 years; 83% women, 17% men) and 95 had dermatological diagnoses (psoriasis or psoriatic arthritis; mean age 38 years; 67% women, 33% men). Approximately 70% of all patients reported seeking FPP information from patient advocacy groups; 57% of both cohorts used the internet as information sources; and 73% and 42% of rheumatological and dermatological cohorts used their hospital and specialist doctor, respectively. Despite this, 58% and 67% of patients with rheumatological and dermatological diagnoses reported limited or no access to FPP information, with > 70% of dermatological patients of early/mid-reproductive age reporting a lack of access to this information. Overall, 68% of patients with rheumatological and 73% with dermatological diagnoses had biological children, amongst whom 24% and 18%, respectively, indicated their disease affected the number of children they ultimately decided to have. The most frequent FPP concerns among patients who did not want any/more biological children were disease worsening, heredity and taking care of the child. Conclusions: Despite awareness of available sources of FPP information, patients expressed experiencing a feeling of limited access to information and having concerns that affect key decisions regarding FPP. The results of this survey highlight a need for improved and more standardised FPP information for patients with CIDs in Denmark.

AB - Background: Patients with chronic inflammatory diseases (CIDs) may encounter challenges in their family planning journey. Here, we report on the access to family planning and pregnancy (FPP) information and the concerns among patients in Denmark with CIDs. Methods: Patients aged 18–50 years with CIDs participated in an online survey. Patients were recruited through patient advocacy groups and were asked to report information on their diagnosis, concerns related to FPP and perceptions of access to FPP information. Descriptive statistics were applied. Results: Of the eligible respondents, 368 had rheumatological diagnoses (rheumatoid arthritis, psoriatic arthritis, juvenile idiopathic arthritis or axial spondyloarthritis; mean age 40 years; 83% women, 17% men) and 95 had dermatological diagnoses (psoriasis or psoriatic arthritis; mean age 38 years; 67% women, 33% men). Approximately 70% of all patients reported seeking FPP information from patient advocacy groups; 57% of both cohorts used the internet as information sources; and 73% and 42% of rheumatological and dermatological cohorts used their hospital and specialist doctor, respectively. Despite this, 58% and 67% of patients with rheumatological and dermatological diagnoses reported limited or no access to FPP information, with > 70% of dermatological patients of early/mid-reproductive age reporting a lack of access to this information. Overall, 68% of patients with rheumatological and 73% with dermatological diagnoses had biological children, amongst whom 24% and 18%, respectively, indicated their disease affected the number of children they ultimately decided to have. The most frequent FPP concerns among patients who did not want any/more biological children were disease worsening, heredity and taking care of the child. Conclusions: Despite awareness of available sources of FPP information, patients expressed experiencing a feeling of limited access to information and having concerns that affect key decisions regarding FPP. The results of this survey highlight a need for improved and more standardised FPP information for patients with CIDs in Denmark.

KW - Chronic inflammatory disease

KW - Family planning

KW - Online survey

KW - Pregnancy

UR - http://www.scopus.com/inward/record.url?scp=85112410572&partnerID=8YFLogxK

U2 - 10.1007/s40744-021-00348-2

DO - 10.1007/s40744-021-00348-2

M3 - Journal article

C2 - 34392489

AN - SCOPUS:85112410572

VL - 8

SP - 1419

EP - 1433

JO - Rheumatology and Therapy

JF - Rheumatology and Therapy

SN - 2198-6576

IS - 3

ER -

ID: 304796062